It is important for people with arachnoiditis to find a caring, compassionate and knowledgeable physician to oversee their treatment. It may take a whole team of medical professionals to treat the myriad of medical problems related to the disease, so a gatekeeper (doctor) is needed to monitor treatments. These professionals can ensure that treatments do not overlap or interfere with one another.

You have the right to participate in decisions about your treatment. Let your doctor know what does and doesn’t work for you. Tell your doctor that you want to know the risks and benefits of each treatment you receive. You have the right to be an INFORMED Patient.

As new information becomes available, BPAA will share it with its members. And if you find new information please share it with us. If you know the names of doctors or medical facilities that are familiar with and treat the symptoms of arachnoiditis, please call or send us their names.

A special thank you to Dr Charles V Burton for his dedication and contributions to BPAA. His broad knowledge about arachnoiditis and failed back surgery syndrome (FBSS) has helped numerous people worldwide. We thank him for his generosity in developing the video tape, “Spinal Arachnoiditis: Its Clinical Significance in Regard To Worldwide Spine Care,” and for allowing BPAA to distribute it to raise funds to help the organization financially, and for caring enough to help us educate people about this complicated disorder.

A special thank you goes to Maureen and Bill Evans from the United Kingdom for supervising the video taping of the September 1995 Arachnoiditis Conference presented by Dr. Burton in London, England and for giving it to BPAA to distribute-----Margaret A. Hill

Resources:

1. Asano M, Fujiwara K, Yonenobu K, Hiroshima K. Post-Traumatic Syringomyelia. Spine. 1996; 21(12): 1446-1453.

2. Barnett H. Syringomyelia associated with spinal arachnoiditis. Editors: Barnett H, Foster J, Hudgson P. In Syringomyelia. 1973; 220-44.

3. Brammah TB, Jayson MIV. Syringomyelia as a Complication of Spinal Arachnoiditis. Spine. 1994; 19(22): 2603-05.

4. Burton CV. Lumbosacral Arachnoiditis. In Neurological Surgery. 1996,3; 112: 2483-91.

5. Garancis JC, Haughton VM. Pathogenesis of postmyelographic arachnoiditis. Invest Radiol. 1985; 1: 85-9.

6. Gegalian L. Use of Hyaluronidase in Central Nervous System. Surg Neurol. 1979; 12: 3-5.

7. Gourie-Devi M. Intrathecal Hyaluronidase Treatment of Chronic Spinal Arachnoiditis of Non-infective Etiology. Surg Neurol. 1984;22: 231-4.

8. Hurteau EF, Baird WC, Sinclair E. Arachnoiditis following the use of iodized oil. J Bone Joint Surg. 1954;36A:393-400

9. International Classification of Diseases, 9th Revision, Clinical Modification (ICD-9-CM)

10. Long DM. Chronic Adhesive Spinal Arachnoiditis: Pathogenesis, Prognosis, and Treatment. Neurosurgery Quarterly. 1992, 2;4:296-319.

11. Maltby GL. Progressive thorium dioxide myelography. N England J Med. 1964, 270: 490-96

12. Mostwin J. (James Buchanan Brady Urological Institute, Johns Hopkins Hospital.) Fact Sheet # 3: Urinary Problems and Diseases of the Spine. Back Pain Association of America 1994.

13. National health and Medical Research Council. Epidural use of steroids in the management of back pain. Canberra: Commonwealth of Australia, National Health and Medical Council. 1994.

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