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1999 ARACHNOIDITIS SURVEY

Sarah Andreae-Jones MB BS (Smith)
Patron of The Arachnoiditis Trust
England

Results: Symptoms / Signs

 

TOTAL NUMBER OF PARTICIPANTS 317
(223 Female,
94 Male)
Age range 30-82
Mean age group 50-60
Pain 100% (see accompanying notes)
   
Stiffness 79%
Muscle cramps / twitches / spasms 81%
Weakness 82%
Balance difficulties 70%
Numbness / tingling 86%
Bladder / bowel / sexual dysfunction 68%
Difficulty in thinking clearly / decision making / memory 63%
Depression / anxiety 62%
Sleep disturbance 84%
Increased sweating 63%
Heat intolerance 58%
Intermittent low grade fevers 28%
Flu-like feeling and malaise 42%
Raised ESR / white cell count 14%
Enlarged lymph nodes 10%
Joint pains 72%
Skin rashes 32%
Frequent infections 20%
Sinusitis 32%
Slow healing / tendency to scar easily 29%
Limb / generalised swelling 38%
Reflex Sympathetic Dystrophy 3
Trouble swallowing 27%
Angina type chest pain (but no heart disease found) 31%
Weight gain 50%
Reduced mobility (i.e. house / chair / bed bound?) 68%
Allergies (new, e.g. multiple drug allergies) 25%
Dizziness / vertigo 44%
Dry eyes / mouth 58%
Bruising 39%
Fatigue 76%
Dental problems (tooth / gum) 28%
Low potassium 10%
Abnormal blood tests 13%
Abnormal kidney function 7%
Abnormal liver enzymes 7%
Chemical Hepatitis 1
Osteoporosis 14%
Shortness of breath 32%
Lung problems 10%
Gastrointestinal problems:
   General 41%
   Irritable Bowel Syndrome 8%
Visual problems 45%
(Women) Menstrual irregularities (if pre-menopausal) / early menopause / painful periods 14%

 

Diagnosis of Autoimmune disorder:

Ankylosing Spondylitis 4
Autoimune hearing loss 1
Autoimmune pancreatitis 2
Coeliac disease 1
Crohn’s disease 2
Type 1 Diabetes Mellitus 12
Endometriosis 4
Haemolytic Anaemia 1
Lupus 5 (incl. 1 discoid) + 4?
Multiple Sclerosis 11 + 3?
Polymyalgia Rheumatica 4
Psoriasis 1
Psoriatic arthritis 1
Raynaud’s disease 26
Rheumatoid Arthritis 23
Sarcoidosis 1
Sjogren’s disease 3 + 2?
Thyroiditis / Hypothyroidism 20
Ulcerative Colitis 1
Uveitis / Iritis 1
Vitiligo 1
Pernicious Anaemia 1
Miscellaneous Autoimmune 9
Fibromyalgia 19
? FMS 2
Total (incl.FMS) 154 (48%)
Number of cases (i.e. with one or more diagnosed autoimmune conditions) 87 + 11 FMS
98 (30% prevalence)

 

Diagnosis of:

Multiple Chemical Sensitivity 2
Myalgic Encephalopathy 1 + 1?
Chronic Fatigue Syndrome 3
Myofascial Syndrome 1
Myalgia 1

 

Other neurological diagnoses:

Epilepsy 3
Parkinson’s 1
Peripheral neuropathy 1
Postpolio syndrome 1

 

Miscellaneous conditions:

Carpal Tunnel Syndrome 1
Paget’s disease 1
Erythema nodosum 1
Renal calculi 7
General renal problems (e.g hydronephrosis, haematuria) 13
Hiatus hernia / reflux oesophagitis 8
Chronic leukaemia 1
Thyroid cysts 2 (see below)
Tumours:
   Breast 5
   Prostate 2
   bladder 1
   cervical 1
   thyroid 2
   ovarian 1
   pituitary 1
   colorectal 1
   renal 1 (with lung metastases)
   "bowel" 1
   malignant melanoma 1
   Melanoma 1
   Lymphoma 1

 

Table of Contents

Introduction
Results: Epidemiology
Results: Symptoms / Signs
NEXT: Summary
Thyroid Problems
RESEARCH SURVEY 1999: Undiagnosed Cases

 

 

 

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Monitoring Society
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