
To ask the hard question is simple. W.H. Auden

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A touchy topic
It's
not about malingering or making it up.
No one would say that they are sick or in pain in order to get something.
And there are already too many people out there saying "it's all in your
head", or "you must be imagining it" or "having a nice holiday?" to people
disabled from work.
At the same time, we also know that behaviours get reinforced. If
there are payoffs, especially immediate ones (like reduced stress), for doing something, we are
more likely to do it again. See "the Human
Dilemma" for more on this. Given the
stress of living with a chronic condition, it is natural
to try to minimize stress where possible. There are situations in which
the condition itself creates the opportunity.

Can symptoms serve a purpose?
Yes, if we accept a few ideas:
- Health is affected by many things, including our behaviour and beliefs
- Human beings are complicated (see #1)
- Any change has both positive and negative effects
- We are not always consciously aware of what is reinforcing our
behaviour.
Examples of reinforcers:
Bill hated his job but could not quit. He thought that his chances
of getting another job at his age were slim. His back pain was a
way out of an intolerable situation. The pain was real, but he may not
have realized that it was being reinforced.
Jill's marriage was not that close. Her husband was often
pre-occupied with his own things. When her fibromyalgia flared up, and
she had a major crash, he would become quite attentive. Her flare-ups
resulted in her getting what she needed and could not get any other way.
She does not like feeling so sick, and she may not know that the attention
of her husband could play a role in her symptoms.
Theresa was forced into a marriage by her family. After her two children were born, she could not handle
having sex any more, but she did not want to suffer her husband's anger when
she refused sex. She got sick and remained so for decades. Doctors
could never accurately diagnose her problem, and multiple surgeries did not
help. Her husband did not insist on making love to her when she was so
frail.
Reinforcers
confuse the issue and make it harder for people to recover.
There are usually many, many more losses than gains for being disabled,
chronically ill or in pain. This is obvious to those of us who have
worked with clients with these problems.
At the same time, there can barriers to recovery that people are not always
aware of. When symptoms have some kind of pay-off, like reducing
stress in one area of life, recovery is that much harder.
This is true even when there is more stress in another part of life.
People find themselves in a strange paradoxical situation: what makes
them feel better right now, will ultimately make them worse: the
Human Dilemma again.
If a person has to rely on the condition to manage or reduce the stress
of certain situations it will be even more difficult for them get
better, or make the condition a smaller focus of life.
There
are alternatives.
A symptom would not be reinforced if the person could manage another way.
If Jill can improve her marriage, her fibromyalgia will not serve a purpose.
She may still have it, but there would be one less thing to contribute to
her flare-ups. If Bill was able to make a clear decision to retire and
live on his savings, his back pain would not be reinforced. Then he
might be able to relax, and this could help his back pain to some degree. If
a symptom were used to deal with a marital problem, developing the courage
to be assertive, and communicate will make the relationship, not the
illness, the focus. And this would be more appropriate.
In general, having the courage to make tough choices, to speak up and
deal with rather than avoid problems, will reduce any payoffs there might be
for a symptom. Clear communication about what you want or need will make
referring to your condition less necessary.
Questions
to develop self awareness: Ask yourself
- "Does
my condition serve some larger
purpose?"
Examples
- "Are there things that I cannot get any other way that I can now get
because of my condition?"
- "Could I obtain these things without referring to my condition?"
Cautions:
- Remember the principles of Holistic Health,
and that our health can be affected by many
things. Don't think that just having a positive
attitude or acknowledging that your condition has some reinforcers is
going to magically cure it. We are mind AND body, and we are
affected by both our internal AND our external environments.
- Do not assume that you got this condition because of some character
flaw.
- Do not indulge in blaming yourself if you do see that your condition
serves a purpose.
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