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Your condition affects those around you
Ripples
in a pond
When a rock is tossed into a pond, the ripples spread over the surface of
the entire pond. Everything is moved. In the same way, when a
member of a family or group develops a chronic illness or pain, things are
different for everyone to some degree. Everyone's quality of life can
be affected.
Case example
Change
in roles.
One of the biggest changes that takes place in when people have to take
on new roles, jobs, or tasks. This can involve practical changes, like
a partner having to do the heavy housework or yardwork now, or get a job.
It can also involve deeper changes in responsibility.
For example, one person in a couple may have always have been the
one who makes most of the money, and makes the big decisions. If this
person is not able to do this anymore, the other will have to take up the
new challenge.
This can be hard for everyone. Often the person who can't provide
as much or as well feels useless or less valuable. The person who has
to take on the new role may feel burdened.
There can be bonuses for this as well. For example, some people say
that they now have time to spend with their children and family since their
problem started. Spouses sometimes find that they are good at things
they had never expected, which is a pleasant surprise.
Common
problems
There are a number of common problems, signs that show that a couple or a
family is having trouble adjusting to the change in health of one member:
Patient's:
anger and resentment
too independent or too dependent
avoiding social life
avoiding sexuality
expecting others to understand without explanation
expecting others to care all the time
not giving friends enough credit
self-centered behaviour
Partner's:
anger and resentment
catering to the partner
too much focus on the condition
avoiding sexuality
limiting their own activities
limiting the partner, overly protective
However, there are a number of skills and choices that people can make to
turn this all around. See 10 Resolutions for Family
Members if you are a family member of someone with chronic pain or
illness.
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Surprising solutions?
Clear
communication
Feelings
The changes need to be talked about. Feelings need to be expressed.
If everyone has been affected by a problem, everyone has some right to talk
about it and to express what it is like for them. If people don't
talk about their feelings, they
often have to act them out.
This can be confusing or disturbing for others.
It is important that the discussion of feelings is done in a way that is
respectful and responsible. See the People Skills
sections of the site for more.
Needs
Similarly, there needs to be good communication about what each person
needs. "I need some time alone" would be more clear and effective than
being angry or withdrawn, for example. "I need some help" would work
better than "You don't care" or struggling alone. "I need some
reassurance" is more clear than "You never tell me you love me" and less
likely to create conflict or guilt. Tell others what you need, and
keep it simple and clear. And don't expect that you will always get it
when and how you want.
Maintaining
balance
In a partnership, both people have needs. When one person is
struggling with chronic pain or illness, it is easy for a couple to lose the
balance, and to focus on the needs of the sick person. Paradoxically,
some people with chronic pain seem to have the opposite problem; that other
people's needs come before their own. This can end up creating more
symptoms as they drain their limited resources. Maintain a balanced
approach. Have respect for the needs of everyone. This maintains
a relationship through the difficult times.
Respecting
boundaries
Boundaries define your personal space, your possessions, your ideas
and feelings, and your needs, from other people's. When people cross
your boundary, they interfere with your personal space, ideas, feelings,
things, etc. When you cross other people's, it's the same. You
have the right to your own personal space, ideas, self-expression, and so do
other people. Understanding this simple principle prevents a great
deal of needless conflict and bad feeling.
To make others feel bad, take their things, not let them talk, tell them
they should not feel a certain way, invade their privacy, or touch them when
they don't want it, are all examples of crossing their boundaries.
When you let others do this to you, it's called being passive, or a
doormat. When you do it to others, it's called being aggressive,
invasive, controlling, or a bully.
Avoid both styles. They both create problems in relationships.
Don't cross other people's boundaries without consent, and don't let them
cross yours without your permission.
See Conflict Resolution skills and
Assertiveness skills for more.
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